Emotional Aspects

In addition to its physical symptoms, MS can have profound emotional consequences as well. At first, it may be difficult to adjust to the diagnosis of a disorder which is unpredictable, has a fluctuating course and carries a risk of progressing over time to some level of physical disability. Lack of knowledge about the disease adds to the anxieties commonly experienced by people who are newly diagnosed.Later on, if disease progression causes losses or changes in roles such as wage earner, spouse, or parent, there may be anger and frustration. Additional stress can stem from loss of income or family problems related to the symptoms and disabilities of the person with MS.

Emotions may not be under control

Some people with MS experience mood swings and/or uncontrollable laughing or crying (called emotional liability). These result from lesions-damaged areas-in emotional pathways in the brain. It is important for family members and caregivers to know this and realize that people with MS may not always be able to control their emotions. Medications such as amitriptyline (Elavil®) and valproic acid (Depakote) are used to treat these emotional changes. It is also important to recognize that depression is very common in MS - even more so than in other, equally disabling chronic illnesses.

Support is helpful

Professional counseling or participating in a support group may be helpful in coping with the emotional burdens of MS. An active lifestyle can also be helpful. As much as possible, this should include activities that the person enjoyed before being diagnosed with MS, as well as new interests suited to the physical changes the individual is experiencing. A nurse, social worker, psychologist, or other therapist may provide helpful guidelines.

Source - The MS Information Sourcebook produced by the Information Resource Center and Library of the US National Multiple Sclerosis Society. © 2001 The National Multiple Sclerosis Society. All rights reserved. Reproduced with permission.