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TYSABRI ALERT - from the MS Australia medical spokesperson, Dr. W. M. Carroll [1 August 2008]
This morning MSA was advised that two patients with MS, overseas, have been diagnosed with PML (progressive multifocal leucoencephalopathy) while on Tysabri (Natalizumab).
Details are not complete but one patient with aggressive MS developed the condition after 17 infusions having had no other treatment. The second had previously received Azathioprine and an immunomodulatory therapy.
Both were detected by the post marketing surveillance system set up for Europe and similar to the TAPP programme in Australia. With the cessation of Tysabri treatment and the use of plasma exchange the condition has been halted and the patients are now stable.
Biogen-Idec have advised the TGA of the development and said that it highlights the need for continuing vigilance by MS practitioners and immunotherapy nurses. Further information will be posted as it becomes available.
W M CARROLL
Chair MSRA Research Management Council
If you have any concerns please contact your Neurologist. |
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MS Society of
Tasmania Annual Report 2007/08
A full review of the operations
of the Society for the year ended 30 June, 2008 ... Read
more |
Ausimmune
Study - Progress Report January 2007
MS
occurence has increased over time in many locations, including parts
of Australia. In Australia, incidence of MS and Type 1 Diabetes
varies by latitude, which likely reflects environmental factors.
The
Ausimmune Study aims to assess the incidence of MS in various locations
around Australia and assess whether:
- Increasing latitude coincides with increasing first demyelinating
episode (FDE) in Australia during 2003 - 2006.
- FDE occurrence is associated with environmental factors.
- Lifestyle and environmental factors influence disease progression.
Click
here to see the most recent progress report. |
Multiple
Sclerosis - a $2 billion disease in Australia
An Access
Economics Report has revealed that Multiple Sclerosis costs Australia
nearly $2 billion per annum (financial and disease burden), making
the disease one of the countrys most costly, yet current community
understanding and awareness, research funding and provision of services
to people with the disease does not reflect this ... Read
more |
Multiple
Sclerosis Research Australia
MS
research Australia has been established with the aim to significantly
increase the resources available for MS research and to accelerate
progress towards knowledge of a cure and cause for MS... Read more |
Menzies Research Institute
Information on Vitamin D levels for people with Multiple Sclerosis...
Read more |
Wheelies House Swap
A New Website For People Who Use Wheelchairs
wheelies.net.au is a new website which has been released to enable people who use wheelchairs to meet, talk and swap houses which they know are suitable for their holidays.
wheelies.net.au provides a free community service for people who find it difficult to have holidays because of cost or lack of suitable accommodation
The brainchild of Sharon Lennox and with help from Harry Wilsdon who are both living with multiple sclerosis wheelies.net.au is proudly sponsored by the MS Society of Tasmania; gifted by the Tasmanian Community Fund; and made by Ionata Web Solutions...Read More |
